Gleason

Steve Gleason's life took a drastic turn in 2011 when, at the age of 34, he was diagnosed with Amyotrophic Lateral Sclerosis (ALS). The news was devastating, as doctors forecasted a short window of two to five years before the degenerative disease ultimately consumed his body. This bleak prognosis, coupled with the recent discovery of his wife Michel's pregnancy, raised a mix of emotions within him. The impending arrival of their first child, a son they had yet to give a name, served as a bittersweet reminder of the uncertain future ahead. In an attempt to provide his unborn child with a lasting legacy and a deep understanding of who his father was, Gleason turned to creating a video journal. This project, initially intended for his son to understand and connect with his dad on a personal level, gradually evolved into a meaningful chronicle of Gleason's daily struggles and experiences as he battled ALS. Throughout the video journal's progression, Gleason tackles several fundamental aspects of his life, including his relationships with his loved ones, his efforts to build a foundation for patients suffering from the same incurable disease, and his relentless determination to adapt to his rapidly changing physical condition. The foundation Steve Gleason established, aptly named Team Gleason, focused on providing ALS patients with the support and resources needed to manage their debilitating condition and live meaningful lives despite their circumstances. By fostering a sense of community and encouraging patients to remain engaged, Gleason aimed to challenge the disease's negative stigma and inspire those affected by ALS to push beyond what seemed insurmountable. Through Team Gleason, Gleason sought to instill a sense of purpose and hope in his fellow ALS patients, ensuring that his experience and legacy would not be defined by the confines of his increasingly fragile body. One of the pivotal tools that allowed Gleason to adapt to his progressing disease was medical technology. The use of voice-activated devices and advanced communication systems enabled the former NFL player to communicate effectively with his loved ones and manage the various aspects of his daily life. In addition, Gleason incorporated a custom-built, voice-controlled vehicle that allowed him to navigate and engage with his environment, thus retaining some semblance of autonomy despite his rapidly deteriorating physical condition. As the video journal progressed and Gleason's health continued to decline, the documentary captured the raw emotions and unwavering resilience that defined his unyielding spirit. From recording conversations with loved ones, sharing heart-to-heart moments, and documenting his interactions with medical professionals, to showcasing the resilience of those around him, the video journal served as a testament to Gleason's character and the unwavering support of his family and friends. Throughout his battle with ALS, Steve Gleason exemplified the value of living each day to its fullest potential. As he struggled to preserve his health, foster a stronger connection with his family, and make a lasting impact on the lives of others, the video journal transcended its original purpose and became a powerful symbol of hope and perseverance. By confronting the darkness of his disease head-on and forging a path towards greater meaning and purpose, Steve Gleason left behind a legacy that continues to inspire others in the face of adversity, reminding us that even in the face of the most daunting challenges, there remains the potential for life, love, and purpose to be lived to its fullest extent.